How Print Sales Support ME/CFS
My best friend Freddie has had myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) for over three and a half years. He has been almost entirely immobile and bed-bound, barely able to speak, see or hear for over two years. I write about that in ‘Freddie’s Story’. This page is to explain how donations from sales of my photography prints will work.
In 2025, I ran eight marathons - one in every state and territory of Australia - raising money for two charities: ME Association (in the UK) and ME/CFS Australia. My plan for now is to continue to add proceeds from sales of my photography prints to my fundraiser for the marathons. It is currently just over £19,000 and I would love to get it to £20,000!
How the donations work
It’s pretty simple, really, but I want to make it clear in the interest of transparency. I will donate 10% of every sale to the fundraiser on JustGiving. That is 10% of the sale price, not 10% of the profit. It’s easier and cleaner that way - and more gets donated.
So if you were to purchase an 18×12 inch print (unframed), for $89, $8.90 will be donated to charity.
Easy.
The Charities
I am extremely grateful to the ME Association and ME/CFS Australia for their support over the course of the eight marathons challenge, such as helping promote my fundraiser.
ME Association
The ME Association offers relief to persons of all ages with ME/CFS by providing information, furthering education in the illness, and supporting research.
They have some excellent resources on ME/CFS, including explanations of the condition and free literature. They fund research into ME/CFS, recently launching the £1.2 million Rosetta Study examining the immune systems and biology of people with Long Covid and people with ME/CFS. This is the largest amount any charity has committed to Long Covid or ME/CFS research.
You can visit their website for more info here: https://meassociation.org.uk/
ME/CFS Australia
ME/CFS Australia is the peak body for patient-led ME/CFS charities across Australia. Their focus is on advocacy with the federal government, research initiatives, national collaboration between organisations, and awareness campaigns.
The team at ME/CFS Australia is composed entirely of volunteers. Most of them have ME/CFS or care for someone with the illness. When I was in Adelaide to run the marathon there, I was fortunate to meet Craig and Penelope from ME/CFS Australia, with whom I had been collaborating on my challenge. It was special to meet them and I am grateful to them for making the effort to see me. It was deeply moving to hear their stories.
You can visit their website for more info here: https://mecfs.org.au/
Penelope and Craig from ME/CFS Australia.
